Any concerns about what had been coming out of R's ostomy site and what would need to be done about it were all but put to rest this morning during rounds. Staff indicated that what had been coming out of his ostomy site was most likely (some medical term I cannot remember) and not the formula itself. In reviewing R's history, he had done this previously as the amount of formula he had been getting was being increased. Doctors will continue to monitor it (as they do everything else), but not much of a concern.
We were also informed today that play time is equally as important as his time to rest. OT, PT and Family Life departments are engaging him in activities throughout the week. We are attempting to get up to the hospital as much as we can to spend time playing with him also.
Our focus for the next week...
- that R would get the quality rest and enough activity that his body needs.
- that he will be able to come off of oxygen
- that the feedings would continue and increase to the amount his body weight needs
- that any lingering sinus/chest congestion would disappear
As I think about tomorrow (Day 100 since surgery), I can't help but wonder if we are one-half, one-third, or two-thirds the way through his recovery. I don't know, but we really want to get him home! On a personal note, our family is in the midst of a challenge balancing life (family time, kids activities, homeschooling and more) with getting up to spend time with R. A final request would be that the time we spend with him could be supernaturally multiplied - not for our benefit, but for his healing process.
Thank you for taking this journey with us.
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