Wednesday, September 24, 2008

Day 106

Read on for some WONDERFUL NEWS!

On the last post, I shared with you our focus for the week. Here are the results...

- R has been able to get plenty of rest and his body is responding very well to care.

- He is not on any oxygen.

- Feedings are going at the maximum amount for his weight. He did manage to pull the nj tube (goes in his nose, through his stomach and into his intestine) out again over the weekend, but all is well now.

- His lingering sinus/chest congestion seems to be all but gone. He has a few more days of antiobiotics left.

The fantastic news continues...the doctors have given orders for R to move out of the PICU to the Pediatric floor. They also have asked us to schedule some time to begin our training for his discharge - meaning that they will train us on how to care for him, give him medications, etc. I asked the Transplant Nurse Coordinator what things need to happen in order for him to be discharged. She went through the criteria of when transplant patients are released and R is beyond all of them, except for training of the caretakers. In short, we might be able to take him home in as short a time as 2 weeks!!!

Our focus for the next week is this...

- Jen & I can find some time to get up to the hospital together to get the training and fully understand all the care we need to give him.

- There would be minimal disruption in our children's lives for the next few weeks.

- That R continues to improve and is able to be discharged as quickly as possible.

2 comments:

Anonymous said...

That is just wonderful news for you guys. So proud of both of you for being such wonderful caregivers and parents. Our love to you and the children. Kay and D

Anonymous said...

I am so happy for you that R. will be going home soon and I pray for amazing grace and strength for you with the challenge that lies ahead for you to care for precious R with all your other obligations.
GOD IS SO GOOD!
Love and prayers, Peggy <><