It has really been several weeks of taking steps in the right direction - for which we are very thankful. Last night, Jen, Hannah & I went up for a visit. We were able to spend time playing with him in his crib. He loves to look in the mirror. We were even able to get a few smiles out of him! It was great to see him have fun like a little boy should. Today, however, he is not feeling so well. It seems he has developed an infection in his central line. It's being treated with antiobiotics. In addition, he has some sort of chest cold and congestion. The nurse decided to put him on oxygen because he had a bit labored breathing with all of the crud in his chest. He was scheduled for a biopsy this afternoon. The last biopsy showed some mild rejection - we'll see what this one shows.
The other area being watched is his wound. His incision continues to heal nicely. There is a great deal of fluid/stool coming out of the fistula on his abdomen. We are hoping that it heals into a nice new ostomy site.
There still is no timeline for R's departure from the PICU to the Ped's floor and then discharged to us. We fully understand that it will take time for his body to heal. We also truly believe that it will greatly help the healing process for him to come home with us. We look forward to the day when he joins our family in our house.
Thanks for praying with us.
1 comment:
Thanks for the update. Still praying for all of you. Still believing in the One Who holds the future!
Lord, You know the physical needs of R and You have the sustaining power to be this family's strength. Thank You for the hope and trust we have in You!
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