Sorry for the delay. We were away for a week taking a break. Here is the latest...
- A biopsy was performed last Thursday. The results came back with some mild rejection. Not good news, but the doctors were not surprised and prescribed some steroids. They seem to think it will take care of the problem. Another scope/biopsy is tentatively planned for Tuesday or Wednesday to see how things are going.
- R continues to be off of the ventilator. His respiration rate has slowed since the last time we saw him. He had been breathing like the ventilator - sometimes as many as 1.5 - 2 breaths per second. Now his rate is a little more normal. His lungs are getting stronger as time passes.
- As of today, R has been off of dialysis for 4 days. He is urinating more than he had been - above the minimal level set to keep him off of dialysis. His blood work also shows that his body (through the urine) is able to rid itself of waste products.
- His incision is healing very well. There is a pressure vacuum still attached that is greatly helping the healing process. He had a g tube that went into his stomach. He pulled that out over the weekend. Instead of putting the tube back in, they have opted to put a bag over it to collect any fluids that come out.
- During rounds today, a decision was made to have his arterial line pulled out of his leg. One less tube - yeah! If he does well today, they will take his catheter out tomorrow. Another reason to celebrate.
- R has been on a cardiac medication called amiodarone. The amount given has been decreasing, however, there is some question about switching from an IV dose to an oral dose. If you recall, the previous two times they've tried that, his heart has not responded well. A consult with cardiology is being set up.
As tubes disappear, R's mobility increases. We have been able to hold him over the past few days. We are looking forward to seeing if they will let us take him for short walks and do other things - as much as he will tolerate.
I hope that you are as excited as we are about the progress he is showing. There are still a number of areas of concern, but good news is such a breath of fresh air. Thank you for praying!
2 comments:
Yes, I am excited about the progress R. is making. What a joyous day that will be when you can take that little fella home.
With love and caring, Peggy
Phil 1:6
This is good news! What that must feel like to hold him! Am praying that the short walks & "play times" come soon. Also praying that as God meets all of R's needs, He will also meet all the needs of H,N,& H, as well as T&J's.
Lord, would you cover this family with Your love and protection, healing and strength as only You can. May they be able to be witnesses, testifying to supernatural sustaining that can only come from You. And may You continue to receive honor and glory from R's little LIFE and those he touches, as only You deserve.
Blessing to your WHOLE family!
c
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