Today was a reminder of the long journey this will be. It was not a good day. The staff often remind us that this sometimes happens with these little guys.
The three tubes that R had taken out a few days ago were put back in. He is on a different ventilator because the previous ventilator was at it's highest level for assisting him to breathe. During rounds, the doctors were concerned because R's oxygen saturation levels kept dropping. He was given medication to keep him comfortable and to paralyze him. Keeping him still helped the new ventilator to be as effective as it could.
In the afternoon, a scope with a small camera was inserted into R's ostomy to see how it was doing and to take a biopsy. Along with seeing what is going on inside the organ, the biopsy will show whether or not the organ is showing rejection. The doctor stated that one side of the stoma had good blood flow and looked good. He had a difficult time penetrating the other side.
The doctor also ordered a CT scan this afternoon. Because R's condition had worsened, they wanted to see if there was any leaks of air or fluid into his belly area. The CT scan this afternoon confirmed what they had thought. There was some pressure in his belly from some air. Suspecting this, the doctors were on standby, ready to take him into surgery. The doctors had to reopen his belly and were able to relieve the pressure. The doctor said that it seemed some of the walls of the bowel were thinner, possibly indicating they had been irritated by the earlier procedure.
As of 11:00 pm, the nurse tells us that they are having a difficult time stabilizing his blood pressure and his oxygen saturation levels are in the low 80%. They should be at 100%.
He has had a difficult day today. We will pray that he stabilizes for the night.
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